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# Face of the Day
- URL: https://goodoil.news/face-of-the-day-1273/
- Published: 2025-08-19T18:30:50.000Z
- Updated: 2025-08-19T18:30:49.000Z
- Description: Pharmac told the Herald it was assessing an application to fund the drug for children aged 2 to 6, but didn’t know yet when or if a decision would be made to do so.
- Author: Good Oil Staff
- Tags: Face of the Day

> A Lower Hutt family have had to move to Australia to access a life-changing cystic fibrosis (CF) medication for their 4-year-old daughter and prevent further irreversible damage to her small body.  
>  
> Trikafta, described by one user as “the most incredible medical breakthrough that we’ve had for cystic fibrosis”, is not a cure for the condition, but treats the cause instead of symptoms and is estimated to extend users’ life expectancies by decades.  
>  
> Pharmac told the *Herald* it was assessing an application to fund the drug for children aged 2 to 6, but didn’t know yet when or if a decision would be made to do so. The previously reported unfunded cost of Trikafta per person in New Zealand was about $330,000, excluding GST, per year.  
>  
> CF is a genetic condition that causes the body to produce a thick, sticky mucus, causing obstructions primarily in the lungs and pancreas. Those with the condition are more susceptible to lung damage and infections, and issues with their digestive system.  
>  
> For mum Kayla Delaney, the news her newborn baby had CF was “devastating”, particularly given some [earlier New Zealand estimates put the average life expectancy for CF sufferers at 31 years.](https://www.nzherald.co.nz/bay-of-plenty-times/news/cystic-fibrosis-trikafta-means-rotorua-mother-goes-from-preparing-for-her-sons-final-days-to-planning-his-21st/ON7FCS6UEZFRJP7O7AEUPAXM7M/?ref=goodoil.news)  
>  
> NZ Herald

[Read More](https://www.nzherald.co.nz/nz/wellington/kiwi-family-moves-to-australia-to-get-cystic-fibrosis-drug-trikafta-for-daughter/3BCD53ESKRCW7JIZGMJ4V5JBY4/?ref=goodoil.news)